Building a legacy…

It has been the week  of every parents night mare. Yet its not a time we had dreaded because it had never been on our horizon.

Emily didn’t fight cancer. She had cancer twice, reached remission twice. It wasn’t a battle just simply a challenge that she had taken on and won.

Transplant however was a different story.

We believed Transplant was the only option. We still very much believe it was the correct decision.  We will be eternally grateful to the mystery Spanish gent that gave her a chance of life. The  opportunity to have 14 more months with her. His donation gave us an amazing family Christmas all together without a hospital in sight.  Her 18th birthday. Her sixthform leavers ball. A 1 year post transplant tapas night. A family & friends wedding.  Starting university.  Planning a future.

Transplant was tough. The first 100 days quickly passed with an equal mix of time home & in hospital.  But as time went on less and less time was spent at home. 309 days in hospital during 2015 was a strain on everyone but there were very much victories. The medical team would visit early so she could have a few hours to attend lectures to keep up to date on studies.  They very much adopted her wish to get to Reading University and study microbiology.  A dream that occupied her last discussion with her consultant.

The last few days were very sad but we still had no idea what laid ahead.

We remain shocked and confused about why she is no longer here. But we are accepting that the difficulties were simply too great. If there had been more options/ drugs/ treatment then her incredible medical team would have found them. In the end she took control and did it her way. With dignity and respect for herself and those around her she passed away on March 12th. Our hearts are bursting with pride and grief.
The future is filled with her ambitions.  She left plans many plans for us to keep busy. We  intended to continue her legacy.

Her legacy will be to support the building of a Bone Marrow Transport Ward. One in which she had hoped to work one day.  One where patients can have dignity and access to toilets while in isolation.

https://www.justgiving.com/remissionpossible

As a family of five with an amazing  community behind us we will strive to keep her ambitions alive.

We have booked Ball at  Celtic Manor on 22nd October. A Santa Run on 10th December plus many more events are being planned. All support welcome. Every £1 in the pot will make a difference.

But simply the most important thing to remember is she was in remission.  She did not have cancer. Remission was Possible.

“I don’t want you leaving this saying how  inspirational I am unless you are inspired and motivated to do something”.  Emily Remission Possible.

So please get in touch.  Join in. Lets get building a legacy.

Donna, Andrew very proud parents xx

Advertisements

Posted on April 15, 2016, in Guest Blogs, Inspiration. Bookmark the permalink. 8 Comments.

  1. Dear Folks, Have had a catch up with Nick in work; he’s poited me in the initial direction of two colleagues who may be able to help. I’m also waiting to hear bacj from our College Principal with her thoughts. As soon as I hear anymore next week I will let you know. Andrew.

    Like

  2. Dear Andrew, Donna and Family, I am so sorry for Your loss, we are going to keep you in our prayers. Yesterday we found out about Emily and it was a horrible shock, wish I’d been able to attend the funeral, she commanded massive respect across the generations. I work at South Gloucestershire & Stroud College and WILL try to raise more awareness of the issues and the need for donor registration which Emily championed as we have a captive audience of c4,000. I do trust and pray that Emily’s legacy dream of the Ward will happen soon. Love from Andrew, Emil and Lucy. xxx

    Like

    • Andrew we would love to come to your college and do a talk about signing up. We are in process of making a short film to help with this.
      This would be a great opportunity to follow on from what Emily started.
      Remission Possible will continue. We have plans big plans . Please email contact details.

      Team Remission Possible

      Like

      • Dear Family. I’m sorry I didn’t get a chance to read your reply until just now – had the day off yesterday; my Em had tonsilitis and I ‘m forever being told I need to get a smart phone. I attended a “Safeguarding” course this afternoon in work and alongside this I felt that personal well-being as well as racial tolerance were two items that would sit very well alongside safeguarding. I understand that the racial side will be developed in a further course called WRAP. If you don’t mind, then tomorrow I’m going to approach our Safeguarding Lead & Head of Learner Services, his name is Nick Herbert and he also sits on a tri-area panel covering Gloucestershire / South Gloucestershire, Bristol and Stroud, working closely with other agencies and stakeholders in the well-being of our 4-18 communities. However, it’s not only that geographic community, I mean I live in Newport and know that many students attend from here, the eastern valleys areas and as far east as Chepstow, Caldicot etc. I’m sure that while there is an amount of curriculum guaranteed personal well-being and hygiene education in the 11-16 environment this tends to stop at that point, save for sexual well-being. I’m a believer in `”getting the word out” and with a community of multi ethnic students, this is an opportunity to reach out to those around us who may be that person that has the right bio-credentials to help someone in the future, if only we can “tell them” and “sign them up”. Anyway, I’ll say “good night”, “God bless you ALL” and give you a line or two tomorrow by way of an update. My work e-mail is “andrew.blackman@sgscol.ac.uk”, personal “ahblackman@outlook.com”, work number 0117 909 2251 and mobile 07852 704395. Love from Andrew, Emily and Lucy. XXX

        Like

  3. Emily was a truly inspirational young women who’s legacy will live on .

    Like

  4. Your family are in my thoughts and prayers to look forward with courage

    Like

  5. I am heartbroken to hear this devastating news. I have been following Emily’s blog because she reminded me a little of my own teenage daughter who died from the side effects of her bone marrow transplant in 2014. I’m just so sorry that you have to endure the pain of grief and loss. You will be in my thoughts and prayers.

    Like

  6. Here at llantarnam grange arts centre you will find knitting on each table where you can sit and knit a square.that will be made into a blanket for the young people in hospital.taking inspiration and support for Emily and her beautiful family and the amazing strength they have.

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: